Patient Support Forum (FIRST Foundation)
Time & Location
About the Event
Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines. The meetings will include a light breakfast, lunch, and childcare for families with children. Original link: http://www.firstskinfoundation.org/patient-support-forums.