update: we have raised enough money to purchase a Jason microsilk bath for Hanna!
we reached $15,000!
Hanna and her mom Megan are very special to me because they are one of the first people I connected with on my icthyosis journey. Hanna is a beautiful determined eight year old with a kind heart. We first met at an Ichthyosis conference when Anna Wasn't even a year old and Hanna just loved holing Anna. I would love if you could help me buy a microsilk bathtub to make Hannas day to day life alot easier. Thank you!
we have raised $20,000!
Lauren is a 15 year old with harlequin ichthyosis. Lauren was sent home only a couple of days after birth and put on hospice. She was given no chance at survival, but proved everyone wrong. after a pretty bad infection which landed Lauren in the hospital we decided it was time to give Lauren a nano bubble machine.
we reached $25,000!
Matty is a very happy four year old with harlequin ichthyosis. Matty lives with his grandmother Amy and loves all things that a regular boy would love. He has a special interest in elevators and loves to ride in them everywhere that he goes. we were able to send Matty his very own portable nano bubble machine, thanks to all of you!
for this giveaway we teamed up with the foundation for ichthyosis and Polar products to give away $5,000 worth of cooling vests! people with any type of ichthyosis cannot sweat leaving them vulnerable to heat stroke. We were so happy with this giveaway that we will be doing one again very soon. A lot of people are able to enjoy the summer months, that previously were not able to. thanks for all of the donations!
Thanks so much for helping raise enough money to buy Georgia a portable nano bubble machine! we are so grateful for the community we have built for these beautiful children to feel so much love. Gerorgia and her family thank you so much!!!