update: we have raised enough money to purchase a Jason microsilk bath for Hanna!
Hanna and her mom Megan are very special to me because they are one of the first people I connected with on my icthyosis journey. Hanna is a beautiful determined eight year old with a kind heart. We first met at an Ichthyosis conference when Anna Wasn't even a year old and Hanna just loved holing Anna. I would love if you could help me buy a microsilk bathtub to make Hannas day to day life alot easier. Thank you!
Lauren is a 15 year old with harlequin ichthyosis. Lauren was sent home only a couple of days after birth and put on hospice. She was given no chance at survival, but proved everyone wrong. after a pretty bad infection which landed Lauren in the hospital we decided it was time to give Lauren a nano bubble machine.