read about my mission and consider donating just $2 a month and making a huge difference in the lives of many.
my name is Jennie and I started the harlequin diva foundation to help people that have ichthyosis and other skin disorders. My daughter Anna was born with harlequin ichthyosis
and I soon realized that very few things that are needed to help people with rare diseases are covered by insurance. I take small monthly donations and one time donations and I help people buy what they need. From micro silk bathes to cooling vests, air conditioners, and even lotion. If a person with ichthyosis needs help, we help them. I cannot change everything these kids may go through in their lives but I can make it easier for them. Help me, help children and adults all over the world get the supplies they need.
Macron lives in an orphanage in Haiti and is currently in need of more than just a portable machine. Macron was abandoned on the side of a road in Haiti at only three months old, medical care is incredibly difficult because of how remote of an area he lives in. Macron has already fought off many infections because of the lack of clean water and until recently, was only able to bathe in rain water.
I want to give him a portable machine but more importantly I want to give him medical care, lotions, and I want to facilitate his adoption into the US. Macron is lucky enough to have a caregiver Maria that wants to adopt him and she is currently living in Haiti to care for him full time. She needs help and we need to help her. click below and donate today!
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The only managment for icthyosis right now is long bathes and constant use of aquaphor or other lotions.