read about my mission and consider donating just $2 a month and making a huge difference in the lives of many.
my name is Jennie and I started the harlequin diva foundation to help people that have ichthyosis and other skin disorders. My daughter Anna was born with harlequin ichthyosis
and I soon realized that very few things that are needed to help people with rare diseases are covered by insurance. I take small monthly donations and one time donations and I help people buy what they need. From micro silk bathes to cooling vests, air conditioners, and even lotion. If a person with ichthyosis needs help, we help them. I cannot change everything these kids may go through in their lives but I can make it easier for them. Help me, help children and adults all over the world get the supplies they need.
Wissam is a 4 year old from Algeria and we are raising funds to buy her a portable nanobubbler machine. Wissam loves to play and she loves other children but her mother says that often times they will not touch her because of her skin. In march Wissam spent 15 days in the hospital because of infection and dehydration both things directly come from ichthyosis. Her parents say they are teaching her to stand proud when she is older and hope she is proud of who she is. Unfortunately her parents don't have much money and what they do have they spend on her lotions and care. if you can, then please donate because a nanobubble machine would make a drastic change in her and her parents lives
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The only managment for icthyosis right now is long bathes and constant use of aquaphor or other lotions.