read about my mission and consider donating just $2 a month and making a huge difference in the lives of many.
my name is Jennie and I started the harlequin diva foundation to help people that have ichthyosis and other skin disorders. My daughter Anna was born with harlequin ichthyosis
and I soon realized that very few things that are needed to help people with rare diseases are covered by insurance. I take small monthly donations and one time donations and I help people buy what they need. From micro silk bathes to cooling vests, air conditioners, and even lotion. If a person with ichthyosis needs help, we help them. I cannot change everything these kids may go through in their lives but I can make it easier for them. Help me, help children and adults all over the world get the supplies they need.
Consider Donating today
When Anna was born I didn't even know ichthyosis existed.
I struggled with bathing her so often, buying clothings and lotions constantly. Everywhere I turned though I found help, people seemingly came out of nowhere to help my family. I started noticing that I was luckier than most. One day I saw a go fund me from a father who was asking for help to buy a machine for his bathtub. three people in his family had ichthyosis and they needed help. I watched the go fund me as it sat there getting no donations at all day after day I checked it. I decided right then that I would start a foundation to buy necessary things for people with ichthyosis. I would use the people that were willing to do anything for Anna and I would introduce them to others with ichthyosis in hopes that they would want to help them too. that man and his family that inspired this whole thing went on to be my very first donation and I have helped countless others from around the world. This is all because of people like you who are willing to donate to a group of people that are all too often left to fight alone. there is no amount too small so donate today and help me help others!
What is Ichthyosis?
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The only managment for icthyosis right now is long bathes and constant use of aquaphor or other lotions.