read about my mission and consider donating just $2 a month and making a huge difference in the lives of many.
my name is Jennie and I started the harlequin diva foundation to help people that have ichthyosis and other skin disorders. My daughter Anna was born with harlequin ichthyosis
and I soon realized that very few things that are needed to help people with rare diseases are covered by insurance. I take small monthly donations and one time donations and I help people buy what they need. From micro silk bathes to cooling vests, air conditioners, and even lotion. If a person with ichthyosis needs help, we help them. I cannot change everything these kids may go through in their lives but I can make it easier for them. Help me, help children and adults all over the world get the supplies they need.
Jordan and Jackson
Jordan is a wonderful advocate in our community who has ichthyosis. Jordans son Jackson also has Ichthyosis and they recently purchased their first home. they would like to instal a Jason microsilk bath in the home to help them with their daily skin care. this bath produces micro bubbles to help take the extra skin off and makes daily life so much more comfortable. because of the plumbing and electrical work needed for this to happen I expect it to cost around $10,000. There is no-one more deserving then Jordan, she is a constant light in the ichthyosis community and gives guidance and hope to new parents learning the ropes.lets help this wonderful family get the bath that they need.
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The only managment for icthyosis right now is long bathes and constant use of aquaphor or other lotions.