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read about my mission and consider donating just $2 a month and making a huge difference in the lives of many.

Jennie

water for

wellness

my goal is to get enough monthly subscriptions to be able to buy a microsilk bathtub or nanobubble machine each month for a family that has multiple members with ichthyosis or a single member with a severe form of icthyosis. This bathtub is one of the only things that can help the management of severe skin disorders and is not covered by insurance. Each bath or portable machine is about $5000 once we reach that target we buy the bath and then choose a new family.

0nce we reach our goal of five thousand a month through small monthly donations we will branch out and start a program to help people adopt children with ichthyosis that have been abandoned. We will also start sending lotions to kids around the world affected with ichthyosis.

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meet Lauren!

15 years ago the amazing young woman made a an unforgettable entrance into this world. At the time of Laurens birth, living with Harlequin Ichthyosis was still very rare. Laurens parents were sent home shortly after her birth and she was put in hospice. With no chance of survival and no medical treatment given her parents were heart broken. still to this day with tears in their eyes they tell this story. It was absolutely incredible when day after day and month after month Lauren continued to live.

Now Lauren is in her teens and her sweet and loving personality rubs off on everyone she meets. Lauren along with her mother and father have been a huge help for me trying to navigate the new (to me) ichthyosis life. The older kids that have ichthyosis help new parents so much and teach them how their child might be feeling.

Recently Lauren was admitted to the Boston children's hospital for what they thought was an arthritis flare (another side effect of ichthyosis). Upon further testing they found that she had a blood infection. Blood infections can happen very fast and is very dangerous for anyone with ichthyosis. The portable machine Lauren wants would help greatly in reducing her risk of infection and also help her get back to normal 15 year old stuff. please help me give back to a family that has helped me so much on my own journey.

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jennie's blog

What is Ichthyosis?

Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The only managment for icthyosis right now is long bathes and constant use of aquaphor or other lotions.

click below to read Annas story in love what matters.

Annas story

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