Help Anna help others
read about my mission and consider donating just $2 a month and making a huge difference in the lives of many.
Jennie
water for
wellness
Hi,
my name is Jennie and I started the harlequin diva foundation to help people that have ichthyosis and other skin disorders. My daughter Anna was born with harlequin ichthyosis
and I soon realized that very few things that are needed to help people with rare diseases are covered by insurance. I take small monthly donations and one time donations and I help people buy what they need. From micro silk bathes to cooling vests, air conditioners, and even lotion. If a person with ichthyosis needs help, we help them. I cannot change everything these kids may go through in their lives but I can make it easier for them. Help me, help children and adults all over the world get the supplies they need.
we are working on many projects and would love for you to be a part of it.
*** baby Isaac
born in Liberia children with disabilities are often thought of as cursed or witched and are most often left to die. Isaac was blessed with determined and loving parents that want to see him thrive. Both in their 20's they are just children themselves and they are trying so hard to get the care they need for Isaac. The water there is not clean and is brought in from a well and heated for his bathes. Because there is no way to keep this water at temperature, they have been giving him 5 short bathes a day. they have access to lotions and medical care but they need money to help them buy what they need. We are lucky to have a foundation nearby that we can grant money to and they will help the family. my goal is to start with a $5,000 grant for Isaac.
***shipping for Aquaphor
I have a lot of Aquaphor most of which I will bring to the ichthyosis conference in June but there are many people around the world that cannot get it. It costs a lot to send these boxes as they are incredibly heavy but it is so important.
***Cooling vests
I work with polar products and send cooling vests all over the world. Most recently we purchased $4,000 worth of vests to give away at the ichthyosis conference.
***bathes
I have two bathroom remodels happening and more inquiries coming in and the costs of these can be $10,000 or more depending on plumbing and electric that needs to be done to install the Jason microsilk tub. I am asking for your help so I can continue to help people not just in America but around the world.
What is Ichthyosis?
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The only managment for icthyosis right now is long bathes and constant use of aquaphor or other lotions.
